Run 2 Cure Neuroblastoma

Here at phil&teds along with our sister company Mountain Buggy, we are committed to helping families adapt&survive and live life without limit. We take great pride in supporting causes that give back to the communities that have supported us for over 20 years.

Neuroblastoma Australia is one organisation that we proudly support that needs not just our efforts but yours as well. The Run 2 Cure Neuroblastoma fun run held in Sydney, Australia is dedicated to raising funds for neuroblastoma research programs, such as significant and promising research currently taking place at the Children’s Cancer Institute Australia.

Neuroblastoma affects many families, as it is the most common cancer in infancy and claims the lives of more children under the age of 5 than any other cancer. Neuroblastoma can be cured if the lesion is localised, but long-term survival for children with advanced disease older than 18months is low, despite aggressive treatment. There has been no improvement to survival rates or treatment in over 10 years, a cure can be found it’s just a matter of funding and research.

As proud supporters phil&teds and Mountain Buggy are offering some of our most excellent products to help increase entries for the Run 2 Cure Neuroblastoma event. Give these brave kids a fighting chance and show your support! In turn, we will show ours and will be giving away a phil&teds smart and a Mountain Buggy nano. All you need to do is enter the race and you’re eligible to enter to win.

Support this great cause, get involved and come out for a fun day in the sun!

For more details or to register for the event click here!

To enter the phil&teds smart competition click here!

 

Sienna’s Story 

“Sienna was born in London on the 27th of July 2007 and was a perfectly happy and healthy baby girl. We moved to Sydney when she was 7 months old, with the vision of a relaxing and peaceful life by the beach. However, 6 weeks later, Sienna had a temperature, which was originally dismissed as a common infection. When the temperature reappeared 2 days later we took her to Sydney Children’s Hospital in Randwick. Two doctors announced the news; a very large tumour had been found. Our world fell apart. Sienna had the most aggressive type of neuroblastoma called ‘mync amplification’. She needed to follow a high risk treatment, involving high dose chemotherapy, surgery, a stem cell transplant and radiotherapy. Sienna had a 40% chance of survival. At the age of 10 months, Sienna was declared to be in remission. She developed a real zest for life! She was extremely energetic and didn’t believe in sleep! Sienna loved going to the zoo to see her favourite “animals”; she loved drawing, painting, dancing and watching Playschool.

We were hopeful that the disease had well and truly disappeared, but during her routine scans in September 2010, we received the devastating news that there was a new tumour… The chance of survival after a relapse with neuroblastoma was around 1 percent. However, the new tumour was in a new site and had not spread elsewhere, so we embarked on the next round of treatment with radiotherapy and different chemotherapy. We hoped this would buy us time; a new drug was set to be available in 2010 that showed promise. Sydney Children’s Hospital tried to secure Sienna the drug in 2009, when a limited supply was available, but the governing organisation only gave it to children who had not yet relapsed. Tragically, time was not on our side. Sienna relapsed again at the end of radiotherapy, with 6 new tumours appearing. We were then told the news no parent wants to hear: our precious daughter would die from this disease.

We had a glimmer of hope when we were reliably informed that the chemotherapy had good results. This turned into a glow when results should that 5 out of the 6 tumours had responded. The 6th tumour was in the original site and had grown slightly. We hoped the last tumour would respond with more chemotherapy. Sienna was her usual self, a busy, giggling and cheeky toddler. Unfortunately, our hopes were destroyed when the final tumour grew extremely fast and aggressively. Our brave daughter could have beat the disease if her personality alone was the determining factor, but her neuroblastoma was simply too aggressive.

Sienna became a little angel on February 3rd, 2010 at just two and a half years old. She missed the birth of her little brother Jamie, who was born 5 days later. We all miss her dreadfully.”

 

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